I miss my mom. In a presence way. Like a piece of me is missing.
A mother is invincible, well my mom seemed that way to me. She was the pillar of our family. She worked hard to provide a home for us.
She wasn’t always hands on available, but her presence was always available if that makes sense. Growing up, she worked out of the home full time. She provided care for my brother and I when she couldn’t, we went to a babysitter before school and after school. As we headed into junior high and were left to our own devices to get to school and home, we made our own breakfast, packed our own lunches and had to call her at work each day when we got home from school so she could give us a list of jobs to be done before she got home.
We were not close emotionally. She didn’t parent that way. She was always there.
If she didn’t like what you were doing, you knew it. She was always right, for real tho – she would fight tooth and nail about things to everyone, but she was right every time. I don’t remember a time she wasn’t.
The first day I felt my mom wasn’t invincible was the day I sat with her and her doctor and heard her diagnosis. She and I had survived many traumatic events together, I knew in in my deepest of places that she wasn’t going to survive this one.
It’s 12 and a bit years ago now that she had her final walk home. It starts at birth, but her last two years of the race started in the fall of 2008. She is 58.
She had developed a cough that she couldn’t shake. Her doctor sent her for a mammogram in November. She isn’t well, coughing, short of breath. She asks me to drive her to her appointment in Saskatoon. On the way to her appointment, she is talking about cancer and telling me that it could be what she has. My mom was always right, I don’t remember a time that she wasn’t. So thats heavy and I don’t really know what to do with this information.
When the results of the mammogram come, she isn’t given them. Her doctor wants more tests, a couple of scans, biopsies. Each test is a two hour drive to the closest city and a two hour drive home. It’s December and it’s difficult to get into appointments, so her doctor books her in with whatever general surgeon she can to get these scans done – because they need done. Her doctor knew how the system works and if you need attention, they know how to get that done even if it is not the normal route to take. When we are arriving to the tests, the doctors seem confused as to why we are there because everyone can clearly see this is cancer but no one can say it. It’s very scary and stressful. When I think of this time I see flashes of scrubs, metal, white and I feel hopeless. I can see that doctors face and there was no hope in it.
Her last test that day was a scan where she was given a dye injection so they can get a better look at things. I have learned since this day, that this type of scan is to see where cancer has spread in the body, but no one told us that, no one told us anything as we spent that day together testing and waiting.
As we wait for her test – there is another daughter waiting too, she is a teacher and she is grading papers while she waits. I think – why are you doing that here? Little did I know that this is reality when your parent is not well. Actually this is reality when your parent is on their walk home.
When it is my moms turn for the scan, the tech comes to tell us that the machine is broken and they are not able to do the test. For fuck sakes , can this day get any worse for her? Actually don’t ask yourself that question. We wait some more and then get directed to another hospital across the city where they will do her scan. My mom is exhausted. We roadie off across the city. I am tired too and I need this day to be done.
Park. Get out. Find your way to where you need to go. These are tasks that are hard for someone who is very unwell and these task are over the top of heavy for me because I’m supposed to be the caregiver, the adult and my anxiety is in another time zone it is so high. We find our way. Just keep swimming.
The staff tells me that it will take a while so I can go and get a coffee. I wasn’t comfortable to leave her and I wasn’t comfortable with anything including breathing so I just stayed in the waiting area. The flashes I see are cement, dark, green, and I feel dirty. I wait. There is a frenzie of activity and loud voices. A man comes out to tell me that Sandra had an anaphalatic reaction to the dye and they would be taking her to the emergency room for observation. It’s epi injections and I don’t know what else. Fucks sakes.
I follow ish. I find my way. Is my mom going to die today? Does she have cancer? I just need this day to end. I am not ok. I know she is not ok.
We sat in that emergency room for what seemed like forever, it was around midnight when she was released and we could start our 2 hour drive home in -42. I wished for my mom that she could get run over by a bus the next time she crossed a street – because that fate seemed like it would be so much easier than the one we were currently in.
Her symptoms get worse by the day. Her doctor calls us to the hospital to tell us the news. A sit down meeting for the three of us in a waiting room. She has breast cancer that has spread to her lungs, liver and bones. She has a broken bone in her pelvis. Her lungs are full of fluid and she has fluid around her heart. I don’t understand any of what we were just told. I ask what do we do now?
Her doctor doesn’t answer that question and says she must have a guardian angel taking away her pain because the test results show that she should be in excrutiating pain. In this small moment she is not invincible or was she?
She had no physical pain. She took that news like a champ or thats how it looked to me. She showed me strength. I used it to just keep swimming.
There are many steps to a cancer diagnosis and treatment. She didn’t have the time for those steps. It was a few days before Christmas and her doctor could not find any oncologist to take her case until after the new year. I knew she would be dead by then and so did her doctor. Her doctor and a friend of mine that is an RN gave us the advice to take her to RUH emergency and drop her off, so she would get care. If you don’t have a support system and you can’t breathe – you will get treated. Fuck Sakes.
My mom thinks this is her last Christmas with us. So she wants to have Christmas first and then get taken to the hospital. We do as she wishes. On December 26 2008, we take her to RUH emergency. I stay with her because I can’t leave her. She spends the full day in emergency, but it her own room. I over hear nurses talking about how they can’t believe the state she is in and how horrible it is.
We still don’t really know whats going on. She has cancer in many places, but what does that mean? What do we do?
Late that night she gets transferred to a bed on a unit. She spends a month a RUH. She gets care, she gets an oncologist. She asks for the fluid to be removed from her lungs and was told it won’t help her. But she insists. They take many 2 litre bottles of brown fluid off her lungs and she did feel so much better. She has the fluid removed from her heart. They try to send her home.
At this time, I am spending every day with her. She tells me to not come up for a couple days. Turns out her oncologist told her that if she didn’t have a ride home, he would have no choice but to keep her there. After two days, her onocologist booked her first chemo treatment and told her that she would have it and then go home once she could get a ride. She played him a bit and he got on board, because that right there – that is who she was.
This all happened in a 3 month period. 3 months is a drop in the bucket of time, but when you are in it like this, it seems like it will never end. The days are long. The mental and physical load for mom and I was very heavy.
I was detached from my children because of space and hurt. I was not okay. But I had to pretend that I was. And I was still wishing my very sick mom would have a different, quicker, easy end to her walk home.
We don’t get to pick how we leave this place. But sometimes we get the gift of getting a little more time to make moments count.
Over the next 2 years, she went through many treatments, tests, appointments. She had some really amazing times in those two years and she always showed a positive face to us. When she could have treatments at our local hospital, she would often take one of my girls with her. At the age of 7 Makenna was flushing IV lines, because the nurses showed her how to do it. Mom made it less scary, she was so good at that.
In the summer of 2010, she started having cognitive trouble. She had trouble texting and working anything electronic, even the TV. She was spilling things and forgetful. She got lost walking from her house to mine.
One evening when she was sitting at the supper table with us she kept sliding off the chair and couldn’t hold herself up. Something wasn’t quite right, so I took her to the hospital. The doctor did a quick assessment and then talked to me about moms medical history. She had suspicions that the cancer had spread to her brain and asked if I knew it was there. No I didn’t even see this as a possibility. They had never scanned her brain.
She is admitted. I take her for a CT the next day in a city an hour away. She can’t walk. After the test is done, I hear the technicians talking – “should we give her the results? No, what is the point of that”. Fuck sakes, get me out of here. Mom wants fries, so we hit the Wendy’s drive through and I take her back home to the hospital.
Her body is not invincible. When I look back at this moment in time I am reminded that it is not what happens to you, it’s what you do with it.
She begins her 6 week final walk home. She is 60.